I celebrated the great news by having my lungs crash with two weeks of declining lung function. When I reached over 120 points down and significant shortness of breath I went to the Dr for steroid shots and another round of oral steroids.
During this time I also found out from my immunologist that they will be changing my scedule. I will take half of the dose of gamma globulin two days a week. The hope is that this will prevent me from getting so incredibly ill on treatment day. The thought of not getting major migraines, itching, rashes, chills, muscle aches, nausea and vomiting makes me smile. Though I have to admit that there is a fear that I will just be sick twice as much floating around the abyss of my mind. But I am choosing to be positive.
Tonight I am finally breathing easier and ready to get back to a normal schedule. Well my normal frenetic schedule. Also I am looking forward to the possibility of the ceaseless round of treatment misery of the last 7 months.
I guess that is a fairly good place to be tonight....
Just Connie