treatment Journey

Treatment today ... I am groggy,  nauseous, blood pressure high and so ready to be done with thi for a few days. I know that people have trouble understanding the complexities of the gamma globulin. But I am so hopeful that in a month things will be changing for me. The possibility of going to IVIG instead of sub cue  would give life back. I could plan vacations, I could go and see my daughter. I could do things and that is pretty exciting.

Of course I still have to wade through all the pancreas stuff and I know that is major surgery and potential treatments on top of that. I also will have the ongoing Nucala treatment for my lungs. And all of my specialists who have gotten me this far. My family Dr, my pulmunologist, my ENT, my immunologist, my gasteroenterologist, my oncologist, and of course the surgeon who is looking to take the mass out.

That is a lot of Dr's with their finger in the pie. I am thankful for every single one of them. I feel like I have a great team to move ahead with. And the actually play nice with each other.

So for now I am working on bringing my lungs back to normal and to begin to step down on the massive steroids. We will see, At least I will keep working on it.

And tomorrow I see the pulmunologist to see where I am in this mess. Still believing in good things ahead! Still believing I have things to learn on this journey. I am just very grateful for some addition time to journey and learn.

Just Connie